Cellcept for ms

Common Questions and Answers about Cellcept for ms

cellcept

Avatar n tn I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.
Avatar f tn PPMS stands for Primary Progressive MS which is what I was diagnosed with last Thursday. I haven't gotten my prescription yet so haven't read any of the literature. What I've read online has made me a little nervous. Also my doctor telling me I had to get both the regular AND H1N1 vaccines as well as the pneumonia vaccine before starting to take the Cellcept just adds to that.
Avatar f tn I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?
645800 tn?1466860955 Hi Dennis, Welcome back. Has spring sprung in TN yet? The deer here are very active and creating excitement in the area. I had to reread your message - it appears you are saying that the VA doctors are listening to you ? Huh? This is very good news. The 1.5T closed MRI should give them a pretty good look at what is going on if it was done to the MS protocol. Ufrustrated2 had his breakthrough with the VA recently, too.
1781490 tn?1318651465 What is cellcept? How did your diagnosis for ms come about? What was was definitive for ms vs ss?
778275 tn?1326913623 I really appreciate your opinion. Do you think there is more risk for Cellcept for a man at 70 YO that say at 50? I also have several Herpes antibodies including Zoster, CMV and Epstein Barr (mononucleosis at 15). Would that pose another risk? I believe the` Herpes antobodies are the cause of my Myasthenia There is a model for that pathogenesis. If you lower my resistence to Herpes with Cellcept, the MG could worsen - doesn't that make sense? Fandangoman, M.S.,Ed.D.
Avatar f tn The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.
645800 tn?1466860955 t high due to my taking of the CellCept as it suppress my immune system. She finally gave me an RX for Zithromax to see if that will clear things up. I also talked to her about getting hearing aids since I finally got service connection for my hearing. She put in a consult request for that. Hopefully I will get an appointment for that before the new year. I was first told I needed hearing aids about 10 years ago but could never afford to get them. There was some good new...
Avatar f tn s Hospital yesterday and was told by the doctor that I have Primary Progressive MS. She gave me 3 prescriptions - one for Cellcept to slow the progress, one for PT and the third for a scooter. That last one got me teary. I thought I was years away from that but now see that it is for the best. It will give me what I need to go out more. Also had to get the H1N1 vaccine and the pneumonia vaccine because she said Cellcept suppresses the immune system. Not sure there's much more to say.
Avatar n tn I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
645800 tn?1466860955 One more thing I have to worry about is infections due to being on CellCept of my MS. So it tends to freak me out a little bit when I get the chills as that could indicate I am running a fever. Me thinks that maybe I am having a flare? Thanks for listening.
Avatar f tn Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
645800 tn?1466860955 Today I saw my MS Neuro and I asked about any news on new treatments for PPMS. He told me he is expecting a new treatment will be approved later this year by the FDA. It is a infusion every 6 months. Of course I cant remember the name for the drug and have not been able to find any more information about it on-line either. Does anyone here know any information about this treatment.
Avatar n tn My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.
1135761 tn?1260557094 my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?
Avatar f tn don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.
645800 tn?1466860955 So anyway I have started taking CellCept every day for my MS. It is an immunosuppressant and I need to have my white blood cells checked every 12 weeks to insure my immune system doesn't completely stop working. So I sent my PCP a messages asking her to schedule me to come in every 12 weeks for blood work per my Neuro's instructions.
Avatar n tn when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
Avatar m tn I would have an incredibly big issue with being prescribed and taking Steroids and/or Cellcept (MMF) for any length of time without an exact diagnosis and proof of this diagnosis. The possibility for damage is huge and may not be reversible. I would be reluctant to be their guinea pig if I were the patient here. Cellcept is preferable to some other options but it can cause Lymphoma with extended use in some.
1611319 tn?1378618399 I am just now starting to get on my feet. Thank You for the article. We are still treating with Cellcept after finally being weaned off of high doses of prednisone. horrible side effects...
645390 tn?1338555377 I have been on CellCept for about 2 years now with no problems. I am classed as Progressive and it seems to be slowing down the progression of my symptoms. How much your immune system is suppressed depends on the dosage you are taking. I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better.
1511858 tn?1290477459 and just want people to know there is so many things out there that has alot of mimics to ms but isnt and I hope everybody that isnt dx that is suffering make there doctors look elsewhere I told my doctors no more looking for ms we have got to look for something else, I understand it can take yrs to find ms but I knew as sick as I was there would be lesions with it was ms......
Avatar n tn Hi, Welcome to the MS Forum. You have mistakenly posted your question on the Patient-to-Patient Support MS Forum and not the Expert Forum where Dr. Kantor can see and answer your question. Please click on this link and post your question to Dr. Kantor. http://www.medhelp.org/posts/show/787897?post_id=post_4117801 He only takes one question for free a day, but if you want to and you can't seem to get your question in, then you can pay $25 for a certain answer.
Avatar f tn She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).