Cellcept for dermatomyositis

Common Questions and Answers about Cellcept for dermatomyositis

cellcept

778275 tn?1326913623 I really appreciate your opinion. Do you think there is more risk for Cellcept for a man at 70 YO that say at 50? I also have several Herpes antibodies including Zoster, CMV and Epstein Barr (mononucleosis at 15). Would that pose another risk? I believe the` Herpes antobodies are the cause of my Myasthenia There is a model for that pathogenesis. If you lower my resistence to Herpes with Cellcept, the MG could worsen - doesn't that make sense? Fandangoman, M.S.,Ed.D.
Avatar f tn The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.
Avatar n tn I am 17 and have had dermatomyositis for 5 years. i know a lot about medacines and alot of others stuff, seeing how i have tried many of them.
Avatar n tn I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
Avatar n tn Hi I'm Nadia 31 living with Dermatomyositis for almost 8 yrs. I've use olive oil on my skin for all 8 yrs and it works. Also my doctor gave a cream care Elidel this is sooo good. Good luck to you and I wish everything goes well in your life.
Avatar n tn I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.
Avatar f tn HI Williejee03, sounds like your current Dr. is on the right path, curious as to how much prednisone you are on or was started on. if you have Facebook you may want to join a group called "myositis ramblers". it is a closed group, you have to ask to join, and this is for adults with dermatomyositis, (DM) polymyositis (PM) and or inclusion body myositis (IBM) hope this helps.
651074 tn?1248822567 In the mean time the Rhuemotologist put me on 10 mg of Prednisone and Muscle Relaxers which have helped me. He said that he would guess Dermatomyositis or Lupus. My symtoms include headaches, cold sensations, joint pain, inflamations of skin, ear ache, cold sensations, loss of balance. Do theses symptoms match Dermatomyostis or Lupus?
Avatar n tn check dental work for Nickel and other metals...caps and fillings.... I have the same symptoms,..derm suspects dental work getting it all taken out and replaced with non metal.
Avatar f tn Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
Avatar n tn My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.
1135761 tn?1260557094 my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?
Avatar f tn don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.
Avatar n tn when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
Avatar f tn I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?
Avatar m tn She also has juvenile dermatomyositis (so we have done the big, scary medial diagnosis thing before), but has been in remission for that since 2009. Ellenbogen is our choice for neuro (he is already my doctor for my own brain thing) but we are looking for local support, especially from children my daughter's age. Any ideas?
1611319 tn?1378618399 I am just now starting to get on my feet. Thank You for the article. We are still treating with Cellcept after finally being weaned off of high doses of prednisone. horrible side effects...
645390 tn?1338555377 I have been on CellCept for about 2 years now with no problems. I am classed as Progressive and it seems to be slowing down the progression of my symptoms. How much your immune system is suppressed depends on the dosage you are taking. I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better.
Avatar f tn She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
Avatar m tn 5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?
Avatar f tn what specialist treats dermatomyositis/heliotrope of the eyelids, is it rheumatology or dermatology (sp)?
645800 tn?1466860955 t high due to my taking of the CellCept as it suppress my immune system. She finally gave me an RX for Zithromax to see if that will clear things up. I also talked to her about getting hearing aids since I finally got service connection for my hearing. She put in a consult request for that. Hopefully I will get an appointment for that before the new year. I was first told I needed hearing aids about 10 years ago but could never afford to get them. There was some good new...
960462 tn?1284991345 I just started cellcept yesterday, so having fears and questions, but my sarcoid has progressed into the heart and liver so hopefully yes it will slow it down, but ask your sarcoid doc tons of questions cause after reading all the what ifs I'm rather worried about this drug
Avatar f tn and all my results came back so i decided to see what my doctor was testing for.. Well this showed up on my results. I have fibromyalgia and other health related issues. I just want to know if I also have lupus or not. If someone can just give me a yes or no answer I would gratefully appreciate it. Thank You!
Avatar n tn Now on to another final thought... antibodies are specific for myositis (polymyositis, dermatomyositis) do not have sensitive tests, just specific ones right now. He probably did not test you for Anti-Jo-1 antibodies. Adults with dermatomyositis may experience weight loss or a low-grade fever, have inflamed lungs, and be sensitive to light. Dermatomyositis’ cardinal symptom is a skin rash that precedes or accompanies progressive muscle weakness.