cellcept for autoimmune hepatitis

I'm a patient with autoimmune hepatitis type II, and my doctor has just perscribed cellcept in an attempt to reduce or stop use of prednizone. It is really important to me to try and have a child, but I'm afraid if I start cellcept that I shouldn't get pregnant. I know cellcept is a class D drug, and discussed my concern with my doctor.

My husband had autoimmune hepatitis and had liver transplant in March of 2003, he is doing well however, he stopped taking his meds 3 months ago because the meds is very expensive as he say, now he went back to take his meds that is Cellcept and Prograf . He now is feeling pain on his left side of his belly and it is really like distended and hard.and very warm to touch. His belly like shifted to the left ever since he had the surgery.

Billydude and cudagirl: I did some research, and "grade" does play into diagnostics of T-cells and auto-immune related conditions. It appears from what I read to be used most often with cancers and HIV but can be used with any auto-immune condition. What I could not find was a chart of what was a bad or good level. Without that kind of comparison, it's like not knowing anything at all. Billydude: You said that you take Cellcept/Mycophenolate for Sjogren’s?

Interferon can trigger an underlying Autoimmune Disease. Hepatitis C can trigger an underlying Autoimmune Disease. For me, it was the Hep C that triggered the Autoimmune Disease. Many people with Sjogren's (and some other Autoimmune Diseases) are not diagnosed for years even though they have an Autoimmune Disease. The doctors love to dump people with Autoimmune Disorders into the Fibromyalgia, Chronic Fatigue Syndrome, andor Depressions trash cans.

Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?

My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.

my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?

don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.

I really appreciate your opinion. Do you think there is more risk for Cellcept for a man at 70 YO that say at 50? I also have several Herpes antibodies including Zoster, CMV and Epstein Barr (mononucleosis at 15). Would that pose another risk? I believe the` Herpes antobodies are the cause of my Myasthenia There is a model for that pathogenesis. If you lower my resistence to Herpes with Cellcept, the MG could worsen - doesn't that make sense? Fandangoman, M.S.,Ed.D.

i have had extreme bloating and constant nausea,it seems like it started when they put me on cellcept for autoimmune disease,i also had neison wrap over 3 years ago, i have bowel movements every day,have had your basic tests.all they say is i have a lot of gas in my bowels.

The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.

They are going to wein me off of the Prednisone once I am up to the highest dosage of Cellcept which is 2000mg a day. I am starting at 500mg for 5 days, then 1000mg for 5 days, blood work, and then 2000mg. Most websites don't speak specifically about vasculitis of the eyes. All autoimmune disease tests came up negative. I want to know more about this disease. I also have several other issues with my eyes including Chronic Uveitis and Pars planitis, and a few more.

s how much she had to take and also Cellcept for her immune system. After 6 months she was totally weened off of Prednisone and will continue Cellcept until her one year mark and get another Renal Biopsy done in April.....I would love to know about more parents that have had children that gave suffered with this horrible virus that has left my daughter scarred physically and emotionally for life. I do not wish this on any innocent child!

Hope had Myasthenia gravis (MG) an autoimmune disorder of the neuromuscular junction and Megaesophagus, which is not an autoimmune form in which was also treated with the same Med's as humans would receive. (Though with Cellcept and Mestinon med's, it was much cheaper to get the med's out of Canada). With people I don't think you can do this legally though. Only animals I believe. Also "Poquito" in profile picture, had the glaucoma.

Doctors usually recommend an initial high dose of the corticosteroid drug prednisone for people with autoimmune hepatitis. The medication is reduced to the lowest possible dose that controls the disease over a few weeks. Most people need to continue taking the prednisone for at least 18 to 24 months, and some people remain on it for life. Although you may experience remission a few years after starting treatment, the disease often returns if the drug is discontinued.

5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?

With both diseases treatment for hep c with the standard drugs often worsens the autoimmune hepatitis. The autoimmune hepatitis is the result an immune response and interferon stimulates the immune system. And if you treat the autoimmune hepatitis then the immune suppressive drugs may worsen HCV. This makes it very difficult to treat or maybe "manage" would be a better word.

The nodule never really changed, and I never took any meds. About 13 years ago I was diagnosed with autoimmune hepatitis and took Entocort for about 4 years and am still taking Cell Cept. I did have an ultrasound on my thyroid in 2018 and no changes. I moved in 2019 and no longer have an endocrinologist. So, all the changes probably started around 2019. I I do have bloodwork. Everything was in normal range. I can attach a copy of the report tomorrow.

Our son who has been diagnosed with Autoimmune hepatitas has a very bad cough, runny nose and has been coughing up a coffee grind like substance. I found his spit( per say) in the sink after he brushed his teeth this morning, he insists he feels fine and nothing is wrong. He is 16 years old and is on several immunesurpresents at this time which include Cellcept, Tacrolimus, Predisone.

Thanks for the website I checked it out and there is alot of information. I have been given several differant meds but afraid to take any. Oxycodene, Gabapentin, Amitriptyline, Hydroxycholroroquine. I do take a multi-vitamin for anemia. Yes the ANA came back positive Pattern: Nucleolar Titers >1:640 SED 13, SS-A 0.4 and SS-B >8.0H AI. Lip biopsy came back positive for Sjogrens.

Autoimmune Hepatitis causes an elevated IgG. I found the following information on line: Autoimmune Hepatitis: Diagnosis Indications for Testing Persistently elevated alanine aminotransferase (ALT) or aspartate aminotransferase (AST) 5x normal in the absence of any other cause of liver disease or damage Criteria for Diagnosis Diagnosis of exclusion – need to rule out other etiologies of liver disease, including toxins, infections, and hereditary diseases Serum IgG >2.

I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.

In progress. Hepatologist repeated the tests then ordered MRI and MRCP(or something like that) which are scheduled for next week. He is checking for autoimmune pancreatitis, but I didn't notice the IgG4 on the lab request. I haven't seen the report yet...guess I could call and ask. My abdomen is swelling up so badly now that I am sure I will have stretch marks. I do have SLE with lung involvement and overlapping Sjogren's and Systemic Sclerosis. So....would not be a surprise.

i agree with stopping the remicade for now.

Autoimmune (chronic active) hepatitis (AIH): 50 - 80% of cases, 70% at >1:1002; >1:160 is significant serologic evidence - suspicious for autoimmune hepatitis, especially if liver biopsy contains plenty of plasma cells To note: there have been documented cases of levels >1:160 that were not AIH.

Cellcept for autoimmune hepatitis

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