Cellcept and scleroderma
Common Questions and Answers about Cellcept and scleroderma
cellcept
I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
I see ou wrote this a while back but I am hoping you are still here and will see my question. I am supposed to start taking Cellcept for Lupus and I can't find anyone who can tell me anything about how they did on it. Are you there? Did you have any side effects while on it?
I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease.
Let me know if I can answer any questions.
Till two weeks back she was on PanGraaf 4mg, Wysolone (steroid) 15mg and CellCept 1000 mg a day. At that time (i.e. two weeks back) her blood result showed that her TLC has slipped to below normal (which is minimum 4) and was showing as 2.8. Her Haemoglobin seems to have settled around 11.2. All other results including Blood, LFT, Creatine etc show normal. Doctor reduced her CellCept to 500 mg (from 1000mg) and increased PanGraaf to 5 mg (from 4mg) and Wysolone (steroid) to 12.5mg (from 15 mg).
5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also.
Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now.
What could be reason?
I have been diagnosed with CIDP, and have gone through the "normal" protocol.. prednisone, IvIG, plasmapheresis, with no real help. My neurologist now suggests therapy with cytoxan or cellcept. He is "saving" the stem cell/bone marrow transplant as a last resort. I have read all of the info on both drugs and the risk/benefit for each.
Anyways I know the inspire scleroderma site peeps talk about the GI effects of scleroderma all the time. Scleroderma is kind of rare and not everybody knows tons about it. There's a kind of sclero that has no skin involvement called sine scleroderma. Just an fyi.
I am on 5 mg of prednisone and cellcept as well. Can I ask why you stopped taking the cellcept? My Dr is trying to lower me off of the prednisone all together and just stay on the cellcept. I was on 10 mg of pred 4 weeks ago, down to 7.5 mg 2 weeks ago and just got reduced to 5 mg. My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept.
Please google scleroderma and inspire. There is a sight that focuses on scleroderma. They have a very helpful and supportive group of folks.
Raynauds is often the first symptom of scleroderma. I don't have the exact list of symptoms you are describing and I am still in the catagory of undifferentiated connective tissue disease. But the symptoms you are describing especially the raynauds and "sunburnt skin feeling" and some others sound possibly suspicious.
Symptoms of CREST
By Mayo Clinic staff
While some varieties of scleroderma occur rapidly, signs and symptoms of limited scleroderma usually develop gradually. They include:
Tight, hardened skin. In limited scleroderma, skin changes typically affect only the lower arms and legs, including fingers and toes, and sometimes the face and throat. Skin can look shiny from being pulled taut over underlying bone. It may become difficult to bend your fingers or to open your mouth.
I have localized scleroderma (morphea) and want to have rhinoplasty and a chin implant performed. Are there any risks associated with having localized scleroderma and having these procedures done? Where can I got to find out information on this?
i think the Dr wants to start, cellcept and eliminate diazapam nd steroids....after having such relief finally,after so long.. I am afraid.Also of the side effects of cellcept and having massive pain returned.
But which side effects are going to be worse? Preds or cellcept.
I will research and let you know,.
There are other drugs,
but with heart and clogged arteries,
i am not a candidate...
Hang in there. Advil helps. Tons of it, Percocet if you can find a Dr who will write it,.....
My mother had liver transplant two years back. She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
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