Cellcept and ms

Common Questions and Answers about Cellcept and ms

cellcept

Avatar n tn I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.
Avatar f tn I have MS and have an injection of Avonex once a week. I had a flare up in Oct. that affected my legs so my Dr. just prescribed Cellcept. I filled the prescription yesterday and was scared to death after reading the literature on it. What is PPMS? I will be interested in seeing if anyone has used this medication too. Sunnyb.
1781490 tn?1318651465 My Neuro has me on an immunosuppressant (CellCept 2000mg ) I have been on the CellCept a little over 6 months and it seems to be helping with both the SS and MS. I have noticed that my symptoms ( including fatigue ) have not been as bad...though I am still getting worse... just not as fast. But it could also just be a cycle of less decline and not due to the CellCept.
645800 tn?1466860955 Had my latest appt with Dr. P at the MS clinic today and am feeling pretty good about how things went. But as usual there were questions I didn't thing to ask him about. Last week I had a MRI w/wo contrast, MRA, and VEP tests done. Of course it took forever to get them lined up due to the VA. The MRI & MRA were done at the VA while the VEP was done at Vanderbilt.
Avatar n tn i think the Dr wants to start, cellcept and eliminate diazapam nd steroids....after having such relief finally,after so long.. I am afraid.Also of the side effects of cellcept and having massive pain returned. But which side effects are going to be worse? Preds or cellcept. I will research and let you know,. There are other drugs, but with heart and clogged arteries, i am not a candidate... Hang in there. Advil helps. Tons of it, Percocet if you can find a Dr who will write it,.....
Avatar n tn I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
Avatar m tn Same here i live in Albania and there is few information and ms specialist.. Can you please tell me how your friend did after quitting???
645800 tn?1466860955 It sounds like a simple machine which is good. Diabetis can be tricky. You have a lot going on-I am sorry you are having to go through all of this. Cellcept is a wonderful drug but with every wonderful drug there are some down sides sometimes. I hope you start seeing the upside very soon! Many thoughts coming to you from Kansas!
Avatar f tn I see ou wrote this a while back but I am hoping you are still here and will see my question. I am supposed to start taking Cellcept for Lupus and I can't find anyone who can tell me anything about how they did on it. Are you there? Did you have any side effects while on it?
1135761 tn?1260557094 bad taste in mouth, aches and pains with muscles and joints, diarrhea, and headache. No fever or nausea. Am I just complaining or should I take more seriously. I had blood drawn today. My next appointment with my transplant team is june 15.
645800 tn?1466860955 ve talked to my PC about this and all she said was that I would have to learn to listen to my body to tell the difference between this MS stuff and a real heart attack. And now to top things off My fatigue is going to town. The last few days I have needed to take naps and just figured maybe I didn't sleep too good. But yesterday I needed to take a nap 3 times and the last nap actually ended up being for 11 hours as I didn't wake up with my alarm.
645800 tn?1466860955 Probably my best appointment to date with my MS Neuro at Vanderbilt today. My walking has not deteriorated much in the last two years (slowed down slightly). Put me on two new medicines to see if I will tolerate them. He also want to try an course of IV Steroids to see if that will help me due to my NEW numb (r) face and other new symptoms. Have to wait on that until I get tested for Rheumatoid Arthritis first as they steroids would mess that test up.
1979418 tn?1432135441 I have decided to talk to my neuro about adding LDN to the copaxone for the MS. And just read that it has also shown effective for Sjogrens. Anyone here happen to have taken a slightly off label treatment option and added LDN to their MS regimen? Thanks for reading and hope everyone is doing well as we start a new week!
Avatar f tn Till two weeks back she was on PanGraaf 4mg, Wysolone (steroid) 15mg and CellCept 1000 mg a day. At that time (i.e. two weeks back) her blood result showed that her TLC has slipped to below normal (which is minimum 4) and was showing as 2.8. Her Haemoglobin seems to have settled around 11.2. All other results including Blood, LFT, Creatine etc show normal. Doctor reduced her CellCept to 500 mg (from 1000mg) and increased PanGraaf to 5 mg (from 4mg) and Wysolone (steroid) to 12.5mg (from 15 mg).
778275 tn?1326913623 After a upper respiratory infection last month I have been having someone more weaknesses and even a slight breathing problem at times, so he wants to put me on Cellcept. The problem is Cellcept can cause Lymphoma and other side effects and infection risk,. I want to get off Prednisone due to weight gain and creeping up hypertension and the Mestinin digestive problems are a real pain.
Avatar m tn 5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?
Avatar f tn I have been diagnosed with CIDP, and have gone through the "normal" protocol.. prednisone, IvIG, plasmapheresis, with no real help. My neurologist now suggests therapy with cytoxan or cellcept. He is "saving" the stem cell/bone marrow transplant as a last resort. I have read all of the info on both drugs and the risk/benefit for each.
645800 tn?1466860955 Today I saw my MS Neuro and I asked about any news on new treatments for PPMS. He told me he is expecting a new treatment will be approved later this year by the FDA. It is a infusion every 6 months. Of course I cant remember the name for the drug and have not been able to find any more information about it on-line either. Does anyone here know any information about this treatment.
Avatar n tn I am on 5 mg of prednisone and cellcept as well. Can I ask why you stopped taking the cellcept? My Dr is trying to lower me off of the prednisone all together and just stay on the cellcept. I was on 10 mg of pred 4 weeks ago, down to 7.5 mg 2 weeks ago and just got reduced to 5 mg. My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept.
Avatar f tn I have MS since 1994 I am 42 years old. I have neck and back pain and my sinuses are very active. Is the MS guilty for this. How can I reduse the pain and sinuses?
Avatar n tn adding the cellcept would be to try and lower the prograf concurrently
Avatar m tn we have ruled out tumors...cancer and ms....he has 2 lesions on his brain and white matter also on the corpus callosum of his brain... what next??? am i wrong???? we have been told Conversion Disorder...but my hubby has been seeing a psych doc and she has evaluated him and states he does not have a psych disorder.......i think personally we need to seek a 2 opinion from a neuro that knows what he or she is talking about and does not label my hubby as crazy!!! frustrated beyond belief!!!
984010 tn?1255796138 Right now my doc is tring Cellcept. The jury is still out. But I have been on steroids, Plaquenil, Arava, Methotrexate and now Cellcept.
1611319 tn?1378618399 I hate to ask my doctors the question of this taking my life and how soon. I am on prednisone that we are weaning off and Cellcept 3000 mg per day. It was considered in the mild to moderate stages, but the docs are not sure how this should be treated. no studies have been done on this and am kinda in limbo....
645390 tn?1338555377 I have been on CellCept for about 2 years now with no problems. I am classed as Progressive and it seems to be slowing down the progression of my symptoms. How much your immune system is suppressed depends on the dosage you are taking. I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better.
1511858 tn?1290477459 and yes the doctors and us get stuck on MS ....when I moved here I told my doctor I refuse to go down the ms road and he looked at me and said Im positive you have ms lol after he proved to himself I didnt he didnt leave my side and said we will find out whats going on and he did.....No the fires arent around us thank goodness so sad.....we do need rain...