For many years I have pains that pop up for no reason in joints and muscles and last for usually three to six months and then vanish. I get rashes and tiny red spots on my shins and then clear up. The rashes last about the same three to six months. I had these pains in both my shoulders at once, which almost never happens, so I thought it was my rotator cuffs going due to the work that I do.
I was diagnosed with more than six sites of tendonitis/bursitis following an unknown "flulike" episode in 2007. Prior to that I was in no pain, had no history of trauma or repetitive stress injury and was healthy aside from frequent infections. I now have been diagnosed with:
- Bilateral Trochanteric bursitis and ITB syndrome
- Baker's cysts/bursitis behind both knees
- Bilateral Gluteal bursitis/tendonitis (not sure if that's correct term - ischeal bursitis?
Quite a few of your symptoms are listed under vitamin B12 deficiency. Optimal vitamin B12 serum is above 800pg/mL or 600pmol/L. ANA can be positive in any number of autoimmune diseases. One autoimmune disease that i would recommend testing for is Hashimoto's Thyroiditis (autoimmune hypothyroidism).
Vitamin B12 is needed for proper thyroid function and a vitamin B12 deficiency is common with hypothyroidism (due to low stomach acid).
I have been suffering from almost every symptom listed for Lyme Disease since being diagosed in 2007. Most recently I have had seizures and cognitive problems causing problems at work.
Does anyone have any information regarding preferred treatment other than antibiotics and pills for the symptoms. I rarely have a day withont pain.
Help!
Hi All,
My husband wrote the previous post regarding myself with possible lyme's disease. Here are all my symptoms: headaches, joint aches, swollen lymph nodes in neck, ear pain in and behind ear, jaw pain with some tooth pain, fatigue, dizziness (almost like a brain fog), some word-finding difficulties (could be related to fatigue), and some occasional tingling/numbness in arms, hands, and left side of face. All these symptoms are intermittent. What are your thoughts?
Some who are officially diagnosed with MS, ALS, Parkinson etc. really have Lyme disease. For years I was blown off by infectious disease doctors and told I had a false-positive Lyme test. The years I lost in dealing with the havoc the disease was wreaking inside my body due to nondiagnosis will likely result in permanent disability and premature death. It has already reached my kidneys. If you are undiagnosed and not getting anywhere, don't lose any more time.
I am not medically trained, but to my knowledge it's possible 14 days of Doxycycline was not long enough to eradicate the infection. The tests for Lyme Disease are not 100% accurate. If you are having symptoms, you may want to see a physician who is knowledgable about Lyme Disease (referred to as a LLMD). If you google "Lyme Disease Association" and go to their website, I believe they have a referral function to locate a LLMD.
Well after the positive lyme test, their daughter refused to accept the lyme diagnosis and treatment for lyme. Why ? Because she was already addicted to painkillers and I think the lyme disease had by then affected her decision making (as well as all of the drugs she had been taking). This young woman had been taking so many painkillers, that when the producers and camera crew arrived at her apartment to film her, they found her unconscious on the floor.... glass shattered around her !
It sounds like your doc is in the traditional group and gave you the standard treatment for an earache, not for Lyme. My suggestion would be to find a Lyme specialist for a second opinion. It can be tricky finding one of these docs who thinks bigger thoughts about Lyme, because they are looked down on and sometimes threatened with loss of their licenses for treating longer than a few weeks.
I should non specific white matter at the front of my brain. (I have read this can be related to Lyme Disease and also MS.) I currently waiting to see an neurologist and Im also working with an ENT to rule in or out inner ear problems etc. Im scheduled for a ENG balance test tomorrow that I have been waiting to get an appointment for, for 7 months now.
Anyways I came across information on Lyme Disease on the internet a month ago and started reading it.
I was tested for lyme disease over a year ago by my family physician. Test results came back negative. I was reading an article in a magazine concerning symptoms of lyme disease and everything listed as symptoms I seem to have. I am trying to find a specialist in my area who is knowledgable in this area. Should I have another blood test done to see if things have changed?
Several forms of laboratory testing for Lyme disease are available, some of which have not been adequately validated. Most recommended tests are blood tests that measure antibodies made in response to the infection. These tests may be falsely negative in patients with early disease, but they are quite reliable for diagnosing later stages of disease.
"CDC recommends a two-step process when testing blood for evidence of Lyme disease.
(If this is a duplicate message from me, just ignore ... I thought I had responded.)
I'm not medically trained, but I had Lyme several years ago, and your symptoms are quite similar to what mine were ... but Lyme is tricky, so not everyone has the same list of indicators.
Infectious disease docs are not known generally for progressive views about Lyme Disease, but it can't hurt to get other possible infections ruled out, since your Lyme test came back negative.
Two preliminary questions, tho:
1--Had you taken antibiotics at all in the time just preceding your Lyme test? Some LLMDs will give a short course of antibiotics before the test, to stir up the immune system and show a reaction on the test that might otherwise be erroneously negative.
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