I encourage all of you to have your doctors find this article.
Currently, I am stepping down off of the Adderall
(not safe during pregnancy), and
modifying my medications. I have a high-risk OBGYN who is willing to work with Dr. Grubb, my husband and I, and our future little one. According to both my OBGYN and my cardiologist, there is no reason to avoid pregnancy and it is a workable situation.
I wish all of you luck. I know it is incredibly frustrating and discouraging.